Wednesday, October 21, 2009

10/21/2009: Saddle Bags?

*deep breath* I rolled the piece of gum in my mouth into a ball with my tongue and pressed it against the inside of my top molars. *deep breath* I walked across the room barefoot and breathed in the smell of the stinging alcohol in the antibacterial hand sanitizer. *deep breath* I reached the pastel pink wall where the sun rays danced along the scuffed surface. *deep breath* I turned my back to the wall, looked straight ahead and dropped my medical gown to my wrists. *exhale*

Dr. Nahabedian and his medical assistant Michael spoke to one another in excitement as they reviewed their “work” from my surgery in May. They have never seen an S-Gap procedure long-term and are pleased with my amazing progress. I shared with them that now that my breast has settled I have a dent that runs horizontally across the top of the left breast.

I stood in front of my surgeon and his assistant in my black and white striped panties (which have been coined my “breakout” underwear since I wear them every time I get out of the hospital). They proceeded to pinch my stomach and thighs looking for fat that they can use to transplant into the dent. It is called fat grafting. Dr. Nahabedian ran his finger in a circle around the outside of my thigh.

“You have a little saddle bag we can use.”
“Do you know how offensive that is to say to a woman?”

Dr. Nahabedian laughed and Michael looked very apologetic. (Michael takes everything super serious and doesn’t really get my sarcasm.) Dr. Nahabedian told me to think of fat grafting as a mini liposuction. I basically can choose different places on my body to have him suck out fat, like my (ahem!) saddle bags and that fat will be transferred into the dent in the breast. Amazing process! I was told that I am not allowed to lose any more weight since I am now a whopping 100 pounds. Dr. Nahabedian said he would actually love if I could gain a couple of pounds prior to surgery.

I am having surgery on November 19.

I am told that your body reabsorbs 50 percent of the fat that is transplanted, so sometimes you have to have this procedure twice. (Hopefully mine is a one-time deal.) At the same time that I have my mini liposuction/fat grafting, Dr. Nahabedian is also doing nipple reconstruction. I should get more details in the coming weeks which I will share with you all as I have every other step of the process.

My friends have asked if I am excited or nervous about the upcoming surgery and honestly, I am indifferent. After each surgery I go through a difficult phase of coming to terms with my body again and making peace with the changes – and it is emotionally and physically exhausting. I know I am moving in a positive direction, but it is still hard. The journey continues ...

9/19/2009: The Fuzz

Standing in the shower I ran my finger across the round white scar next to my left breast. My lips pursed and my forehead crinkled as I desperately searched for the memory that would reveal the reason for this scar. Where did you come from? And why do you look like a shiny pearl now that my golden tan has faded?

At gatherings with my friends we talk about how I have been feeling and my recent health. My response lately has been, “I’m great. I’m on a surgery break.” Other people who don’t know about my journey are quickly brought up to speed and are told that I am a cancer survivor. They listen to stories of my treatment and how strong I was through the process. Words like hero and brave are used to describe me. I find myself listening to the stories as though I am hearing them for the first time -- as though I am having an out of body experience. These stories no longer belong to me ...

I haven’t written in awhile because I wasn’t quite sure how to explain what I have been experiencing. There are huge gaps in the last 21 months that I don’t remember at all, or it takes time to recall the specific events that occurred. I’m not quite sure I really want to remember all of it, to be quite honest.

I know that when people experience trauma in their lives that they subconsciously can block out experiences. I don’t think I necessarily have repressed memory, but there are certainly some moments in my journey that are very fuzzy. Now, the fact that I was on really strong pain pills over the course of nine surgeries can be blamed for some of that “fuzz,” but I honestly believe it is deeper.

Now don’t start worrying, please. I have done some research and am not falling into any of the bad side effects of repressed memory, which can be anything from substance abuse and eating disorders to depression and suicide. I am very happy and am slowly coming to terms with the whirlwind of my journey. Actually, I am taking a vacation to Paris at the end of October. I am so incredibly excited. It is a destination I have wanted to go for a very long time and I deserve it.

I have come to realize that my journey is much bigger than I am. My friends and family retell my stories, because my stories were theirs, too. We all experienced my fight against cancer together. I was never alone ...

Thursday, August 27, 2009

8/27/2009: The Result


With my head against my steering wheel I listened to the sound of my tears hitting against the paper on my lap. *Pat, pat, pat*

I took another breath and no sound came out of my body as another wave of emotion rushed over me. It was as though I was screaming under water and the noise was encapsulated in each tiny bubble that rushed from my mouth up toward the surface of the water.

I crumpled the piece of paper and clutched it to my chest. I repeated the last sentence aloud three times – No evidence of metastatic disease. No evidence of metastatic disease. No evidence of metastatic disease.

I had once again threw cancer the middle finger, ran like the gingerbread man, passed “Go” and collected $200 and cheated death – my PETScan was normal. For once being normal is more than good enough for me.

I had my PETScan last Friday at Reston Hospital. It was supposed to be two weeks ago, but there were some miscommunications and approvals that needed to happen with my new health insurance. Thanks Blue Cross Blue Shield PPO for the complication! So for the last two weeks I have been unable to eat or sleep well due to my anxiety over the pending test. So, I finally had my test on Friday and it was the same routine I have gone through time and time again – fasting, IV, blood sugar check, radioactive injection, wait 45 minutes, under the machine for 25 with my arms over my head in a freezing trailer.

The test showed no cancer and no significant change from my last “clean” PETScan. It did find a new postop change in the left buttock (from my bypass and transplant surgery in May) simply indicating a new surgical site. One finding I was not expecting was that the radiation damage to my left lung has “decreased significantly since prior study.” This is the area my oncologist wanted to keep an eye on to make sure it healed properly.

Who knew my little body had so much vigor after all these months of treatment!?

Thursday, August 6, 2009

8/6/09: Practicing My Poker Face


The past few weeks it has been a challenge to keep my poker face. I notice that I am having trouble eating, sleeping and controling my emotions. Just this week I became very biting in conversations with two people close to me – annoying and confusing them. I try so hard to control what I am feeling, or express it in a coherent way, but I never seem to get it right.

I have a friend who battled testicular cancer over the past month. He is athletic, vibrant, young and successful – but not safe from cancer. I met him the night he was diagnosed and talked with him until the early hours of the morning while he suffered from insomnia leading up to the beginning of his radiation. He had surgery and three weeks of radiation and is healing beautifully. He still is baffled by the fact that he had cancer. I told him that would never go away.

Two other friends I met via my blog while going through treatment have both been diagnosed again with cancer. One friend has colorectal cancer and recently they found nodules that were abnormal. He has started chemotherapy again. And my dear girlfriend who kicked cancer’s butt and was growing out the most beautiful brunette locks found another lump. Despite aggressive chemotherapy and a bilateral mastectomy – residual cancer remained in her body. She will undergo radiation and then additional chemotherapy. She is one of the most amazing women I know. As I listened to her news over the phone I wrapped my other arm tightly around my heaving torso. I listened to her complain about having a new scar and not being able to wear slutty tops anymore and how she was going to be sad if she had to “shave her mullet and start from scratch.” We grasp to those things which are easiest for us to wrap our thoughts around – unfortunately this isn’t something that can be wrapped neatly with a bow placed on top. She continues to say that she has three reasons for doing all this again – her husband and two beautiful children. She is such a beautiful person.

I ache for my friends, but selfishly I fear for my own future. It is easy for me to block out pieces of the last nineteen months and blend in with all the other almost-30-somethings. You can’t see my scars and my short bob (now filled with sunkissed red highlights) does not show evidence of ever having had chemotherapy. I look normal – but I am far from it. I survived breast cancer as a 26 year old and I continue to deal with the physical and psychological scars. I am still anemic, my arm swells from lymphadema, my nails are still discolored and brittle, any injuries take SO much longer to heal, my left breast has a dent, my tastebuds are different – but I am alive and no longer look sick.

Tomorrow I will have a PETScan. It has been four months since my last one and I am extremely nervous considering the recent news of my friends. I continue to think positively, because that’s all I know how to do, but it doesn’t change the fact that the fear still exists. Just because I look healthy, doesn’t mean that this is over for me. My journey continues ...

Monday, July 6, 2009

7/6/2009: Nothing Short of Butterflies


I know I haven’t written in awhile and I am sorry for that. Several people e-mailed me concerned that something bad had happened. It didn’t – actually just the opposite!

The last eighteen months have been challenging to say the least and I continued to try to advance professionally and academically while fighting for my life. Although I was challenged in my position at Gannett the passion was missing. However, you have to remember that the week I started at Gannett I was diagnosed with breast cancer. The relationships I made there were so vital to my positive attitude and survival. When I needed to vent or cry my co-workers were there to take a walk or console me in the bathroom. That is what made it so hard to leave. In addition, I had spent 18 months emersed in the development of the video product and strategy for the company and wanted to see it through implementation.

My passion has always been in media content development and strategy. I am a firm believer that things happen for a reason and that when one door closes a window opens. As soon as I read the job description sent to me for the Web Content Developer position at Perfect Sense Digital in Reston Town Center my heart started racing. I have told my friends and family that it feels like I am finally home. I love what I am doing, the fast pace, the people (most I worked with at AOL), and the location. I am so incredibly happy!

Around the same time I was contacted by AOL Shopping about coming back as a freelancer and blogging for their website. I write about anything I want, like brands, products, tips and tricks, trends, dating, advice – there is no limit. I have already had four of my features run on AOL.com which is pretty exciting. I find that having this creative outlet has made me feel more fulfilled.

I know this may seem aggressive, but life is too short. These days I refuse to settle for anything less in my life than butterflies and my heart pumping fast.

Monday, June 1, 2009

6/01/2009: Time for a Break

“Wow I did a good job,” said Dr. Nahabedian.
“Your work doesn’t even come close to your modesty,” I reboked sarcastically.

Both Dr. Nahabedian and I broke into laughter. He began gently moving his fingers around the edges of my left breast. He was surprised by how quickly the scar was healing from the DIEP procedure and that my skin and tissue had softened considerably from the six weeks of radiation I endured last fall.

“So when are we outfitting you with some nipples?” asked my doctor.
“I need a break. I have had so much done to me and I would really like to just enjoy my summer,” I replied.
He responded with a sympathetic nod and wet eyes as he sensed the exhaustion in my response.

I proceeded to show him what had happened now that the tissue and breast has dropped into place. The new tear drop shape is completely symmetrical with the right side, although it left a bit of a dent across the top where it initially sat. My right side is definitely more round and full on top. I explained that the issue is resolved when I wear a bra and everything is pushed into place, but I want it to look better. He suggested fat grafting, but said we should wait three months to see if I drop anymore. We didn’t speak anymore about it since he could tell I was over the topic of an additional procedure for now.

He finished the appointment by taking photos of his “good job” and telling me that I could resume my normal workouts and exercises. I was ecstatic and pleased that he and I seemed to be on the same page about the break I needed so badly.

Tuesday, May 12, 2009

5/12/2008: DIEP Procedure

“If I am not allowed a Frappuccino I will surely die,” I said dramatically to my surgeon, Dr. Maurice Nahabedian, while I covered my face and let the warm tears of frustration run down my cheeks. “I haven’t been able to eat or drink anything for over 36 hours and I am losing it.”
Dr. Nahabedian smiled, looked at my mother and said, “Go across the street and get this girl Starbuck’s.”

I don’t think I had fully prepared myself for the severity of this surgery, nor had I realized how big of a deal it is in the medical field. My surgery is called the Superior Gluteal Artery Perforator Breast Reconstruction more commonly called the S-GAP. S-GAP reconstruction uses tissue from the top of the buttock, which contains the upper gluteal artery. During this surgery, a rounded section of skin and fat (and occasionally muscle) is removed from the top of the buttock. After being transferred to the breast, the tissue is shaped to create the breast mound and is attached to the remaining breast tissue. Using complex microsurgical techniques, the blood vessels are reconnected to existing vessels in the area. Only two surgeons on the east coast perform this type of operation, and Dr. Nahabedian is one of them. A modest man with a strong handshake and a compassionate tone to his voice – he is one of the best plastic surgeons in the United States and he is right here at Georgetown University Hospital. How lucky am I!? I know, weird thing to say coming from the girl diagnosed with cancer at the age of 27.

I was prepped for surgery by three eager medical residents who looked at me like a medical miracle. They asked me all sorts of questions, each taking notes in their notepads and studying “my case.” I felt like I was on an episode of ‘House.’ They explained that all the medical students were excited about my procedure and said, “A lot of people are going to see you naked today.” Hilarious! My assistant surgeon was named Michael Cohen and was one of the chattiest doctors I have ever met. He genuinely enjoyed talking to me and was quite concerned that I remain calm.

My surgeon met with me prior to surgery and drew out the plans with a black marker along my body. I shook from the sterile nature of the room and cold air. Cohen reassured me that it would all be OK. Dr. Nahabedian finished prepping me by drawing the blue prints along my butt. Cohen asked questions about the artery Dr. Nahabedian would be removing and what would be landmarks internally when he opened me up. I turned my head around and asked, “Will you be able to reach into the right butt cheek and pull some fat over to fluff my left cheek?” Cohen thought very seriously about the question while Dr. Nahabedian laughed knowing that I was breaking the serious tension and explained that the right side would not be touched in case it ever needs to be used in the future.

So, I was rolled into an 8-hour surgery with my surgeon, assistant surgeon, three medical residents, two anesthesiologists, oh, and just the rest of Georgetown University.
I woke up very quickly and realized I was in the ICU. My Mom was crying asking the nurse to please let her stay (which she did the entire duration of my recovery), the residents and Cohen were in my room rubbing a wand across my breast, and the only thing that hurt was the catheter which no one warned me about! There was so much activity and all I wanted was to eat and sleep -- neither happened for a long time. (I didn’t know until several days later, but Cohen slept next door that night on the ICU floor incase I needed him.) The nurses had to use this tiny machine called a Doppler Radar (I though that was only for weather!) and rub it across the new section of my breast every 15 minutes. You could hear the blood pulsing through the blood vessel they had sewn together.

Dr. Nahabedian explained to my parents after my surgery that they removed the skin, tissue, artery and fat from my left butt cheek and it took three tries to finally get the bypass created in my left breast. The arteries and blood vessels were not the same size so it took some magic from “the plastics” (Georgetown University Plastic Surgery) to make it all work. The first 48 hours are the most critical and you can usually tell whether or not the transferred area will take.

Between visits from my dad, brother, Uncle Chuck, co-workers, friends and boyfriend I was in pretty good spirits. They had to keep reminding me that it was only one to two visitors at a time. I even had an old girlfriend from high school come surprise me who works at Georgetown University Hospital as an oncologist RN. I was enveloped in love and compassion that I felt incredibly strong. My nurse Jenna even sat at the end of my bed at 3am and talked to me for hours about becoming a nurse and how she’s never seen a surgery like mine. Eileen was my other nurse who spent too much time in my room chatting about dogs, so she was moved to the other side of the floor the next day to care for another patient. She would still stop by to chat though. I believe that these young nurses truly connected with me and my journey. They saw themselves or their friends and sisters in me and it made the 1 in 8 statistic all more real. And quite frankly, I was the most fun person on the floor! One of the technicians on my floor was huge like a football player with a deep, soulful voice. His station was right outside of my tiny private room and he would sing me love songs anytime my door would open or he would bring in a tray of food. It was like something out of a movie. When I took a lap around the ICU floor (part of my physical therapy) with my friend Laurie, the technician yelled, “if you run by the pool I’ll kick you out” followed by a loud outbursts of laughs from the whole unit. I think they appreciated my spirit and survivor mentality.

Tuesday I was able to have the catheter removed which I HATED, then the physical therapist started working with me on walking and learning how to use my leg again. This was something else I had NOT prepared for in advance. I choked back tears as I reached for her hand and drug my limp leg as I tried desperately to walk again. I felt humiliated and defeated. My physical therapist was patient and my mother was strong while watching me struggle. I know it could not have been easy for her. I gritted my teeth, pulled my dark locks behind my ears, took a deep breath and pushed myself. It is going to take a hell of a lot more to keep me down.

The medical residents came by each morning at 5:30am with their notebooks to do their checkup. When Wednesday came around “the plastics” still wouldn’t let me eat or drink anything in case I had to go back into surgery quickly. I officially lost it -- I started crying. They must have notified Dr. Nahabedian, because he came in and told me that he had heard how great I was doing and that he would let me have coffee and food. Additionally, he said he heard that I was doing really well with physical therapy, even doing stairs without help, and if I chose to go home Wednesday night he would let me. I stayed until Thursday enjoying my coffee and hospital meals (with my boyfriend sneaking in some funnel cake) and made a pillow nest for the bumpy ride home.

It wasn’t until I got home to my parents that I got to really look at my incisions. I was disgusted with myself (as I always am initially) and even got close to fainting while taking my first shower. The pain goes beyond physical and challenges me psychologically. It took seven days for me to finally look at myself in the mirror and make peace with my new body. (Although now I am back to hating my hair and calling myself Keanu Reeves and pretending to dodge bullets like in the ‘Matrix.’) Despite my family and my boyfriend reassuring me that my butt doesn’t look lopsided and that the lines of my new breast incision were done so incredibly well – I needed to believe it myself.

Tomorrow I see Dr. Nahabedian for my post-op appointment where he will remove the drainage tubes from my armpit and hip that are irritating me and we will discuss my “touch-up” surgery planned for 3 months (August). He believes that he can make my breasts more symmetrical, but

I am operating on little victories for now …