Showing posts with label tamoxifen. Show all posts
Showing posts with label tamoxifen. Show all posts

Thursday, May 5, 2011

Buh-bye Dark Cloud

Annual doctor’s appointment & blood work: Normal
Annual eye exam: Normal and now eligible for LASIK
Annual retinal scan: Normal—no signs of side effects from the Tamoxifen
6-month oncology check-up: Normal
6-month dentist appointment: Normal
3-month Pap: Normal

It’s been a LONG time since I have had normal test results. I don’t know what to do with myself. I guess I’ll finish my Masters, focus on getting stronger and healthier and plan my wedding.

It is nice not having a dark cloud following me around anymore.

This time, when I went to visit my oncologist, Dr. David Heyer, I took Matt with me. It was important to me that he meets Dr. Heyer; after all he is the man who saved my life. If Matt is going to marry me, I want him to understand that this will always be my reality. We can’t ignore it, or hide from it … we need to face it head on … together.

Dr. Heyer: “If this is completely out of line, please tell me.”
me: I smiled knowing exactly where Dr. Heyer was headed.
Dr. Heyer: “Do you two intend to have children?”
me: Without hesitation I replied, “Yes.”
Dr. Heyer: “Four years ago when all of this began I never thought it would be a possibility for you to get pregnant. I was certain that with the amount of chemo we were giving you that I would push you into menopause permanently.”
me: I interrupted, “Right, but I only missed three months and started right back again consistently every 28 days.”
Dr. Heyer: “I know, and it’s pretty remarkable, even unheard of. Now, in the past people worried that when a woman got pregnant that change in hormones could cause cancer to return. I am telling you that this assumption is NOT true. Getting pregnant will not give you cancer.”
me: “OK.”
Dr. Heyer: “Also, a woman with breast cancer WITHOUT lymph node involvement runs a risk of getting cancer later in life, so there would be a long gap between the first and second diagnosis. However, a woman with breast cancer WITH lymph node involvement, like yours, runs a risk of getting cancer within the first couple of years of remission. So, once we get you past a certain point, we shouldn’t need to worry as much. But you and I have decided it’s never coming back, right? We’re done with this.”
me: “Right.”
Dr. Heyer: “Jennifer, I see absolutely no reason why you can’t get pregnant. You have surprised me and beaten the odds on everything else. However, I want you to finish the Tamoxifen … it’s essential that you have a full 5 years.”
me: “I understand. So, how soon after I’m off the Tamoxifen can I start trying?”
Dr. Heyer: “That’s not really my area of expertise, so I’d defer to your Women’s Physician, but I’d say 3 months.”

Friday, April 15, 2011

The Eyes Have It

So, who knew that cancer could impact your vision!? I certainly didn’t until this morning.

I visited a new eye doctor today and expected to be treated like cattle … after all; this is The Eye Center that always has those iLASIK advertisements on HOT99.5.

With my new VSP insurance in-hand and a recommendation from my friend Kelli, I decided after two years of no eye exams to try a new practice and doctor. Diem Nguyen, O.D. was simply amazing. She spent time discussing my medical history with me and the side effects related to the chemotherapy, radiation, and the medication I am now on called Tamoxifen.

She did a normal exam, checked my contacts and vision, but then she did a medical exam of my retina. Apparently, a side effect of Tamoxifen is damage to the retina. She said that my vision was still 20/20 (with my contacts), nothing had changed, and my retina looked healthy. However, unlike a non-cancer person, I should have my yearly exam, but also a medical exam (covered by health insurance, not eye insurance), and have x-rays of my retina done. This way, they can compare over the years to make sure my retina is not compromised from the medication.

I will be going back to visit Diem Nguyen, O.D. next week to pick up my contacts and have x-rays of my retina done. She tells me that it doesn’t hurt and all they do is put drops in my eyes, but after several years of procedures and surgeries I still get a bit anxious. I’ll let you know how it turns out.

The good news is that I am a great candidate for LASIK surgery! It’s something I have thought of a lot over the last few years and perhaps it’s something I’ll have done in the next year or so. Makes me nervous (although everything does these days), but it’s something fun to consider doing for myself.

xo,
Jen

Thursday, April 7, 2011

I Hereby Adhere to No Funny Business

So here’s the latest … after consults with both my women’s physician Dr. Ivey-Crowe and my oncologist, Dr. David Heyer, I am going to start taking a prenatal vitamin. (I’ll wait a moment to let the awww’s and squeals of my loving friends run their course.)

Now before you get all baby-crazy on me and start monogramming onesies (love you, Kere!) the purpose for this is for three reasons:
  1. My body is lacking some vital nutrients from going through chemotherapy, so I take a lot of pills (multivitamin, C, iron, probiotics, etc.). Taking a prenatal vitamin will boost my vitamin and iron intake. Probiotics should help my digestive track resume balance since I suffer from horrible IBS attacks and nausea nowadays.
  2. It should make my hair, skin and nails look amazing for my wedding day. Let’s be honest, that’s reason enough.
  3. And lastly, IF I decide after two years to try and have children I will have given myself the best possible chance by getting really healthy with vitamins, nutrition and exercise. I will do my part as best I can and God-willing, Matt and I will have a family in the future. If not, we will do a lot of babysitting for our amazing friends.
    My oncologist, Dr. Heyer made sure that I was aware that I am his for two more years; meaning that I need to stay on the Tamoxifen for a full five years. I assured him that there would be no funny business. 
    (I think my mother has timed it all out that between coming off of the Tamoxifen at age 32 and my next surgery around the age of 40, I could comfortably have two children. At which point she will be retired and can provide daycare. You have to love the optimism of my family.)

So between both of my doctors and a little bit of research I have decided to try Trimedisyn. The reason for this is because it is all natural and has all the ingredients that I am missing. I’m going to sound like a spokesperson for a second, but most prenatal vitamins have increased folic acid, calcium and iron. Trimedisyn is packed with 19 other essential vitamins and minerals, 10 probiotics, CoQ10, DHA, ginger root, inositol, and choline. Ginger root eliminates morning sickness, but also nausea that typically accompanies both IBS and iron supplements. And after reading some reviews women are reporting their asthma and allergies significantly improving or disappearing completely. *fingers crossed*

I’ll keep you posted on how the Trimedisyn works.

Tuesday, March 1, 2011

Being Awakened at 30

Me: “Matt, I just want to say something that I’m thinking without judgment or any insinuation. OK?”
Matt: “Um, OK.”
Me: “I’m turning 30 this year.”
Matt: “WHAT? You’re going to be 30?”
Jen: *smiles* “I’m trying to be serious. Just let me get this out.”
Matt: “You’re no fun. OK.”
Jen: “I just realized that I am only on my Tamoxifen for another two years.”
Matt: “I didn’t know you were a Tamoxipro.”
Jen: “Tamoxifen. It’s an estrogen suppressor … a pill I take every night.”
Matt: “Um, OK. So that’s a good thing, right?”
Jen: “Just let me finish … it’s both good and bad. It means that, if we want, we could try to have children in two years when I’m 32. Not that I am implying that we have to …”
Matt: “I get it, Jennifer, you don’t have to peddle.”
Jen: “… OK, well, it also means that the chances of a reoccurrence are greater. It also means that I need to talk to my oncologist about other proactive treatments. I don’t know how to feel about going off the medicine. I guess mixed.”
Matt: “Well, if you want to try and have children we can always try and if you don’t that’s OK, too. If you still want a family, there are plenty of babies that need a loving home. We’ll do what’s best for us when the time comes.”
Jen: “I just can’t believe it’s been three years. I guess it just surprised me when I started thinking about turning 30 and what that meant treatment-wise.”
Matt: “I understand.”
Jen: “That’s all I wanted to say. No insinuations, OK? We just better travel our hearts out the next two years.”

I remember shortly after I was diagnosed with cancer my oncologist told me that there was no time to waste freezing my eggs because the cancer was too aggressive. We needed to start chemo within the week. I was sad and angry. My mother said to me, “Are you upset because the chances of you having children are slim, or because something is being taken away from you?” Such a wise woman. At the time I lashed out at her in anger rambling about always wanting to be a mother, but looking back I know it is because I was being told that I couldn’t have something. I was infuriated. I hadn’t even thought of having a family, but someone telling me I couldn’t (or that the chances were significantly less) enraged me.

This is such a weird statement to make, but it wasn’t until Matt and I decided to raise our puppy, Jasper that a strange maternal feeling swept over me. (I don’t mean to compare my dog to your children—I know logically the two are significantly different, however it was an emotion and instinct I was not accustomed to feeling.) I don’t know what the next few years hold for me, or what my body is even capable of at this point. I do, however, know how strong my spirit is and I am open-minded to the possibility of happily ever after … and even a family.